Thursday, May 31, 2007

Autistic basketball sensation's inspiring year

Jason McElwain, 18, discusses how one night transformed his life


TODAY
Updated: 2:26 p.m. ET Feb. 20, 2007

A year to the day after he stunned everyone by coming off the bench to score 20 points in four minutes in a high-school basketball game, autistic teen-ager Jason McElwain says he hopes his story is still inspiring others to set goals and achieve their dreams.

"What more can you want?" the 18-year-old Rochester, N.Y.-area boy said in an interview on TODAY Thursday morning, as he recounted his year in the spotlight, which included a meeting with President Bush. "My life has changed from going to just an ordinary kid with autism to someone who is a hero."

Jason, then 17, was thrust into the spotlight when Greece Athena High School basketball coach Jim Johnson decided to send him onto the floor for a little play in the team's final regular season game against Spencerport on Feb. 16, 2006. Jason had never made the team but stayed on as team manager, and Coach Johnson thought a little playing time would be a fitting show of gratitude for his dedication.

Jason set the crowd into a frenzy when, after missing his first shot, he sank six three-pointers and a jump shot in the final four minutes. His achievement, captured on videotape, made him a national sensation.

Jason, known as "J-Mac" to friends in his upstate New York suburb, made appearances at the ESPY awards, the NCAA Final Four and the NBA finals. In addition to the president, he got to meet Oprah Winfrey, Peyton Manning and Jessica Simpson.

Letters still pour in from all over the world. People with autism write to thank Jason for serving as a beacon of hope for others.

"Can you look back at all and tell me what is has been like, Jason, to live in your shoes?" TODAY's Matt Lauer asked.

"It's been fun and amazing," said Jason.

Still playing basketball
In addition to his part-time job at a supermarket, Jason still plays in nightly pickup games at the "Y," but admits he has never been able to repeat the feat that got his name in newspapers and magazines from coast to coast.

"When you play with your buddies, do they kind of expect you to make every single shot?" Lauer asked.

"The expectations are really high, but not exactly," Jason said, laughing.

His parents, David and Debbie McElwain, who appeared on TODAY with Jason and his older brother Josh, said they still can't believe all of the attention Jason's performance has received.

"After that game when he scored 20 points, I thought, 'Gee, his name might be in the paper,' " David McElwain said.

Now there are even discussions about turning his life story into a book and movie. (Jason said that he thought Matthew McConaughey should portray him on film.)

'On a roll'
Debbie McElwain admitted that Jason sometimes can get "cocky" about his fame, but she and Josh bring him back down to Earth. She said she hopes Jason's story will encourage other families with autistic children to identify the symptoms early and get treatments designed to foster communication skills before it is too late.

"I never thought he would come this far," Debbie McElwain said of her son's disability, which was diagnosed when he was 2 1/2. "When your child is diagnosed with severe autism, you just want him to speak. Jason had most of the autistic symptoms of severe autism. It was just one hurdle after the next ... You just want him to say one word, because wants an autistic child says the first word, you are on a roll."

Jason's been on a roll ever since the big game, which his team won.

"I just hope more people are aware of autism, the disease autism," he said, "and that people know more about it and get the treatment they need with their children, early in life like my loving mother [did]."

Marked primarily by impaired social interaction and diminished communication skills, autism is a developmental disability believed to be caused by both genetic and environmental factors. Last week, the U.S. Centers for Disease Control issued a report estimating that one in 150 children born in this country are autistic — much more prevalent than previously thought.




Jason McElwain: A very unlikely hero












When autistic student Jason McElwain, left, shot the winning basket for his high school team, he became a national icon, fĂȘted by the President and courted by Hollywood. But as Rupert Cornwell reports, his story may also raise awareness about his heartbreaking and little-understood condition


It was the last home game, and Jim Johnson, basketball coach at the Greece-Athena high school, thought: why not? His team were cruising to victory and there were just four minutes left on the clock. So he put in the 17-year-old kid who had worked so hard all season at keeping statistics, running the clock, and handing out bottles of water and endless encouragement. The gesture was meant as a reward. Instead, coach Johnson created a sporting fairy tale for the ages.

The kid in question wasn't just any kid. At the age of two, Jason McElwain had been diagnosed as autistic. So well, however, had he coped with the adversity that he became a hero to his schoolmates. He also became a relatively decent shooter of a basketball. But 5ft 6in is on the small side for a game where height counts for so much. However many times he tried out, the boy everyone knew as "J-Mac" could never quite get into the team proper - until those four magic minutes one evening last month. But only a Hollywood script writer could have imagined the real-life fantasy that would then entrance America.

In Jason's words, "I just caught fire, I was hot as a pistol". True, he missed his first two simple shots. But then, on the school gym floor, in front of 900 intensely involved spectators, he entered "the zone", the almost paranormal state where everything a sports player attempts turns to gold. His third effort rattled the board and dropped through the hoop. And then another, and another and another. By the time it was all over, Greece-Athena had put its local rival Spencerport to the sword with a 79-43 victory.

Jason alone accounted for 20 of the points, six long-range three-point shots and a two-pointer from closer in. Even though the Spencerport players didn't hustle him too aggressively, it was still four minutes of undiluted magic. When it was over, grown men were weeping as his teammates carried him off the court on their shoulders.

But this was only the beginning. If Britain has a soft spot for gallant losers and epic no-hopers, America's special weakness is for the feel-good happy ending, for the outsider who takes life's odds stacked against him and then tosses them to the four winds. In horse-racing there was Seabiscuit, the little runt of a racehorse who in the 1930s took on and beat the mighty War Admiral, champion of the country's snobbish racing establishment - and in doing so became a symbol of national resilience in the Depression era.

Or take the never-say-die heroics of baseball's Kirk Gibson, the injured Los Angeles Dodger who limped to the plate and then smashed a home run that set his team on the way to the 1988 World Series. From a TV commentator, the feat elicited one of the great lines of sports broadcasting. "I don't believe what I've just seen."

And so it was with Jason McElwain, on a mid-February evening in Rochester in upstate New York - an example not only of an event witnessed at firsthand yet which still beggars belief - but also of how a frightening and imperfectly understood medical condition need not be a barrier to success.

His feat has set in motion an extraordinary, "only-in-America" saga. The local papers were first to get hold of the story, then came national coverage, the interviews on the network news, the videoed clips of J-Mac's scoring spree shown over and over again. And, as was inevitable in a land where the distinctions between real life and the silver screen have long since disappeared, Hollywood got in on the act as well.

Disney has expressed interest. So too has none other than Earvin "Magic" Johnson, legendary superstar of the Los Angeles Lakers NBA team, now proprietor of a chain of urban cinemas, who called coach Johnson to discuss the movie rights to J-Mac's amazing story.

And so it has continued, right up to Tuesday when McElwain was summoned to a meeting at Rochester airport with the former baseball owner, incurable mountain biker and lifelong sports fan who is now the most important man in America. And such is J-Mac's fame and popularity that the person who had most to gain from the encounter was George W Bush.

As is well known, these are not the best of times for Mr Bush, beset by deepening crisis in Iraq, spurned even by members of his own party, and with an approval rating sinking close to Nixonian levels. This week the President was up in the Rochester area, trying to drum up support for a Medicare prescription drugs programme that has attracted only criticism since it was introduced in 2005. But before he got down to serious matters, he obeyed rule number one of the politician's survival manual. If you're not very popular yourself, start rubbing shoulders with people who are. Right now, that means J-Mac.

"I saw it on TV. Saw it on TV and I wept, just like a lot of other people did," he said in that weirdly syncopated style patented by presidents whose surname is Bush. "It's the story of a young man who found his touch on the basketball court, which in turn touched the heart of citizens all around the country."

It was also a cameo, too, of what Mr Bush sees as a uniquely American generosity of spirit that he never fails to extol - a story of "coach Johnson's willingness to give a person a chance, a story of Dave and Debbie's [the McElwain parents] deep love for their son." And as so often in America, the hucksterish and the noble march hand in hand. J-Mac's moment of glory is being celebrated in commemorative T-shirts, masks and mugs as well as a possible movie. Casual Friday, a Rochester-based clothing company, is donating 500 T-shirts. Each will be emblazoned with J-Mac's mantra - "Stay Focused", with a photo of the improbable basketball star being carried off the court in triumph.

But the message on the back of the T-shirt suggests that, just maybe, Jason's celebrity will last longer than 15 minutes, and that his accomplishment will help change attitudes about the neurological condition from which he has suffered all his life, for which no cure has yet been discovered. "J-Mac," it proclaims, "Six three-pointers for Athena ... One slam dunk for Autism."

Jason didn't talk till he was five - "and since then he probably hasn't stopped," says Dave McElwain. Some autistic children are withdrawn and utterly uncommunicative. Jason, who has a relatively mild form of autism, tends to the opposite extreme. "He's very social, he's a charmer," adds his father. At school, he has special-needs instruction, but attends regular classes as well.

In Jason's case, the illness shows itself in fearlessness, even recklessness, but he is also faithful to the obsessive focus and pursuit of a goal that is a hallmark of the autistic person. "He's never had any fear of doing anything," his father says, "or fear of what other people think."

Such imperviousness probably helped him put aside the mishap of missing his first two easy shots that now legendary evening, when other "ordinary" players might have lost heart.

The broader hope now is that Jason's compelling story will give yet more impetus to the search for a cure, and prod the federal government that Mr Bush runs to make more resources available to that purpose.

In cultural and social terms, autism may be more easily accepted than before. But severe cases can wreak havoc on entire families. One out of 166 children in the US is born autistic. The divorce rate for their parents can hit 90 per cent. If the emotional strains are devastating, the financial burdens can be no less ruinous. Home care and therapy for an autistic child can cost anything up to $90,000 (£55,000) a year - usually without insurance cover. If Jason McElwain's night of glory gives some people hope where there was none before, that will be its most precious legacy.

As for the young man himself, he professes to be unmoved by his celebrity, the film talk, the Presidential arm draped around his shoulder at Rochester airport, and the rest of the carry-on. His ambitions are unchanged: to get his high school diploma, go to community college, and then work at the local grocery store. Somehow though, you suspect, it will not be so simple